nynjreg.hdsa.orgHuntingtons Disease Society of America
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nynjreg.hdsa.org
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New York/New Jersey Region Connect with our region: Donate More about New York/New Jersey Region About the Region Sponsorship Opportunities Start Your Own Fundraiser Connect with the National Youth Alliance in NY & NJ 2020 Long Island Virtual Team Hope Walk 2020 Hudson Valley Virtual Team Hope Walk 2020 Upstate New York Virtual Team Hope Walk 2020 Binghamton Virtual Team Hope Walk/Ann's 5K Race 2020 The Great HD Family Find 2020 Iona College Hoop-A-Thon News Events Sponsors #LetsTalkAboutHD with Molly O'Malley Pitman Learn More #LetsTalkAboutHD with Colleen Walsh-Barnes Learn More #LetsTalkAboutHD with Jennifer Caroccia Learn More #LetsTalkAboutHD with Gia Mannone Learn More COVID-19 & HD RESOURCES We know the COVID-19 pandemic is a difficult time for all and may be particularly challenging for those living with or supporting someone with Huntington’s disease. HDSA is committed to sharing the latest updates and resources as we face this public health crisis together. Learn More HDSA & ME: EDUCATE. ENGAGE. EMPOWER. HDSA is pleased to announce a new virtual educational series for the Huntington’s disease community. Learn More HDSA 2019 YEAR IN REVIEW MAGAZINE Take a look back on the highlights from this past year & join us as we keep the momentum moving forward into 2020. Learn More THE MARKER: HDSA’S 2019 RESEARCH REPORT A look back on clinical trials, conferences, fellowships and promising developments in HD research. Learn More THIS WEEK IN HD RESEARCH Dr. Leora Fox keeps you up-to-date on HDSA research activities, recently published work about Huntington’s disease, historical moments in HD research and more. Learn More HDSA CENTERS OF EXCELLENCE The HDSA Centers of Excellence provide an elite multidisciplinary approach to Huntington’s disease care and research. HDSA currently has 50 Centers of Excellence across the U.S. Learn More FREE TELEHEALTH COUNSELING Announcing free online therapy sessions for people affected by HD provided by HDSA & American Well®. HDSA-trained licensed social workers and psychologists will be available to HD families in all 50 states. Learn More PARTICIPATE IN A CLINICAL TRIAL HD Trialfinder identifies trials nationwide looking for participants that share the same diagnosis, stage and treatment history. Learn More PARTICIPATE IN A VIRTUAL HDSA TEAM HOPE WALK The battle against Huntington’s disease rages on and we need you to join TEAM HOPE – VIRTUALLY! A virtual walk is a real walk, but on your terms. You get choose your own course. Now, you can take part wherever you are…from the comfort and safety of your own home, around your yard, or even your neighborhood (following social distance guidelines, of course). Learn More VIRTUAL 35TH ANNUAL HDSA CONVENTION Thank you for attending & supporting the Virtual 35th Annual HDSA Convention. All recorded sessions are now available! Learn More New to HD Locate Resources Enroll in a Trial Donate to HDSA New York/New Jersey Region News 09.12.20 2020 NYC Virtual Team Hope Walk 09.02.20 Greater NY Chapter Education Series: Seth Rotberg 09.02.20 Greater NY Chapter Education Series: Jill Goldman 08.13.20 #LetsTalkAboutHD with Molly O'Malley Pitman 08.04.20 Greater NY Chapter Education Series: Dr. Ashwini K. Rao 07.30.20 #LetsTalkAboutHD with Colleen Walsh-Barnes 07.28.20 2019 NYC Team Hope Walk Recap Video 07.24.20 Greater NY Chapter Education Series: Dr. Edward Huey 07.24.20 Greater NY Chapter Education Series: Dr. Hiral Shah 07.22.20 Here's The Deal with End of Life & Huntington's Disease 07.14.20 Virtual Concert raises Huntington's disease Awareness 07.03.20 ABC News talks about Huntington's disease 06.30.20 Notes of Hope Goes Virtual on July 12 02.07.20 #LetsTalkAboutHD with Jessica Barr 02.05.20 Stony Brook Hospital named first Centers of Excellence in Long Island 01.29.20 Iona College Men's Basketball to Take Part in HDSA Charity of the Game Program 01.13.20 #LetsTalkAboutHD with Gabriella 01.03.20 iHeart WGY News Radio: Local Couple Living in the Moment Following Debilitating Diagnosis 12.16.19 #LetsTalkAboutHD with Jennifer Caroccia 12.06.19 #LetsTalkAboutHD with Rebecca Eastwood 11.13.19 #LetsTalkAboutHD with Destiny Hand 11.11.19 FIVE TOWNS COLLEGE TAKES PART IN HDSA CHARITY OF THE GAME PROGRAM 10.30.19 #LetsTalkAboutHD with Joe Esposito 10.17.19 #LetsTalkAboutHD with Steven Feigenbaum 09.15.19 2019 HD Respite Camp 09.12.19 #LetsTalkAboutHD with Peter DeVore 08.13.19 News10ABC: Capital Region woman with gene for fatal brain disease shares story 06.18.19 #LetsTalkAboutHD with Danielle Valenti 06.11.19 #LetsTalkAboutHD with Karina Krepp 05.31.19 NBC News Channel 13 Health Beat with Chapter President Marcelle Junco 05.13.19 Partnership with Alliance Homecare 05.01.19 Team Hope Walk held in honor of Ann Trip 04.24.19 #LetsTalkAboutHD with Gia Mannone 04.22.19 #LetsTalkAboutHD with James Del Carpio 04.10.19 #LetsTalkAboutHD with Meagan Davis 01.08.19 Join us for the 34th Annual HDSA Convention in Boston, June 27-29 12.20.18 Roche/Genentech Announces Locations of GENERATION HD1 Drug Study 04.16.18 Columbia University is recruiting participants with HD for studies on exercise and swallowing therapy 12.11.17 Ionis that their huntingtin lowering drug Ionis-HTTRx was successful in its first trial and will move forward in 2018 to an efficacy trial 07.16.15 NJTV News interviews HD Family New York/New Jersey Region Events 09/01/2020 @ 12:00 pm New Jersey Virtual Team Hope Walk/Run GOING VIRTUAL TILL October 3: You get choose your own course, you can walk in your driveway, neighborhood, in your house and even on treadmill! 09/19/2020 @ 6:00 pm Albany: Corks & Forks 677 Prime Restaurant: 677 Broadway, Albany, NY 09/27/2020 @ 9:00 am Long Island Virtual Team Hope Walk GOING VIRTUAL: You get choose your own course, you can walk in your driveway, neighborhood, in your house and even on treadmill! 10/25/2020 @ 9:00 am Hudson Valley Virtual Team Hope Walk VIRTUAL: CHOOSE YOUR OWN COURSE 02/19/2020 @ 6:00 pm Iona College Hoop-a-thon Iona College- Mulcahy Gym: 715 North Ave New Rochelle, NY 10801 06/20/2020 @ 1:00 pm The Great HD Family Find Join us for a fun scavenger hunt!! 07/12/2020 @ 7:00 pm Notes of Hope Virtual Concert Join Joan Jett and the Blackhearts virtually with up and coming artists to raise HD Awareness 08/08/2020 @ 9:00 am Albany: Fishy Frolic Virtual Walk & Run GOING VIRTUAL: You get choose your own course, you can walk in your driveway, neighborhood, in your house and even on treadmill! 08/22/2020 @ 10:00 am Binghamton Virtual Team Hope Walk/Ann's 5K Race GOING VIRTUAL: You get choose your own course, you can walk in your driveway, neighborhood, in your house and even on treadmill! 09/12/2020 @ 11:00 am NYC Virtual Team Hope Walk GOING VIRTUAL: You get choose your own course, you can walk in your driveway, neighborhood, in your house and even on treadmill! 03/28/2020 @ 9:00 am Shoot For A Cure- Postponed Due to the COVID-19 (coronavirus) this event has been postponed, but you can still fundraise to support the fight against HD. We will announce a new date soon. Please check back for more details. 07/29/2020 @ 6:00 pm Strike Out HD- Postponed Due to COVID-19, this event is postponed but you can still donate for the event Albany Chapter Greater New York Chapter New Jersey Chapter Upstate New York Chapter Email Share Tweet Share a link Send to: Your Name: Your Email: Your Message: CONTACT US 505 Eighth Avenue / Suite 902 New York, NY 10018 Helpline: 800-345-HDSA (4372) National Office: 212-242-1968 Email: HDSAinfo@HDSA.org What is HD? Find Help HD Research Healthcare Professional Resources Get Involved About HDSA News Events Chapters & Affiliates HDSA Centers of Excellence HDSA National Youth Alliance Publications HDSA Connect Disclosures Tax Returns & Audited Financials Privacy Policy © 2020 Huntington’s Disease Society of America. All rights reserved....
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